Pre OP tomorrow

I have paper work to fill out before my deep brain stimulation surgery. I also have to change my do not resuscitate order. If something were to happen they need to go ahead and bring the kid back. (That's me!) I filled out the order a long time ago. I guess my Roman Catholic sense of morals say one thing but reality says something else. In any case I don't want to be half brain dead.

There are videos of people who have had the surgery on Just look up "deep brain stimulation"

Hopefully the surgery will help me a lot.

On Wensday, the day of the surgery, I will get an MRI. Then I will get pain medication. I will be awake the entire time for the fist part of the surgery. They need my input.

I will thankfully be asleep for the second part of the surgery. They will install a control device in my chest. Just call me robot.

I am having second thoughts now that the surgery approaches but my mind is made up. I am accepting all the help I can get.

Should I still get the surgery?

I am not really anxious to get the brain surgery on the 3 but I think it might help me a lot. I know I shouldn't get my hopes up but I would love to drive again. I would also like to type again. I type one handed now. My tremors are aggravating. If I can get some kind of help with them I would be grateful I think at this point I am ready to try anything.

My major concern right now is a possible conflict with my MS medication and the surgery. There have been problems with Tysabri and people with weekend immune systems. It was even taken of the market temporarily. Now you can only get it with close supervision. I am in a Dr's office when I take it. Right now I am confused I can't get anyone to return my calls.

Where is that thing at?

I'm looking for the paper with the date on it that I have to fill out the paperwork so I can get this BRAIN SURGERY. I think the date might conflict with the date of my Tysabri infusion. I need to speak with my neuroligist to make sure The surgery can even be done while I'm on Tysabri. I think she knows but I want to be sure. People with weakend imune systems have died on Tysabri.

A NEW VIDEO

This is a new video some one at MS World gave me. It is kind of inspirational.

My Ms log

Sorry I have not updated my blog on Friday like I said I would. I was online all Friday too. I think I was playing chess. I did make some improvements. I have posted some Multiple Sclerosis related videos that might be interesting. I haven't watched them all.

My ms seems to have become more manageable after my new tysabri infusion but I have not gotten as much relief from my symptoms as I was hoping to get. I hope the surgery I am scheduled to get goes well.

In my personal life I celebrated my daughters 13 birthday by going out to eat and going to a movie. My mother my niece, my daughter ,my daughters Friend Ashley and me ate at the Olive Garden. It has been my daughters favorite restraint since we ate there on Father's Day 2002.

We went to see the Nanny Dairy's after we ate. I didn't like the movie. I haven't asked my daughter what she thought but i don't think she liked it either. At least she got to spend the night at her Friend Ashleys' house.

!@%$

I'm mad again. I was trying to get a slideshow for my blog. I can't get it to work. I ended up erasing my picture and I... I just thoaght about how I can get my picture back. I have it on my flickr acount.

I am tired now so I will have to do it tomorrow. I want to use a slideshow anyway. I almost got it to work but they were'nt my pictures so I erased it. I will get It eventualy.

My very small but very important readers will be plesed to know that I have a rss feed now. I'm big time! Now I just need the slide show and adsence. I don't think that therre is really anybody reading my blog but.....MONEY is MONEY!

New med

I started my Tysabri infusion yesterday. So far it seems to be working OK. I haven't had any bad reactions to the med. I already feel a Little better. I am a Little worried about how the med and the surgery I am scheduled to get might conflict. There is a danger of plr. I think that's the acronym. It would be bad news for me.

My responce to the med is so good I think that If I could get better with the surgery (If it is safe for me to get) I might be able to drive. I have my fingers crossed.

I don't have time now but I'm going to try to update again later.

Scared?

Who said I'm scared? I don't know the meaning of the word. I'm not that kind of guy. I'm no chicken. Chicken is what I eat for dinner. I'm BOLD and I'm BEATIFUL. There is nothing to fear but fear it's self. Scared is for sissies.

I guess you would have to classify how I feel as aprehensive. I think you could say I'm a little stressed. you might even say I'm averse to the idea of Brain Surgury... but scared? NEVER!

I think I will try to make my updates at least once a week from now on. I might have somthing I want to say sometimes but once a week I plan on saying something. I want to make improvements and I have for awhile. I think I might have to look for help on how I set up the blog on line or somthing. I also need to set up Blogs for my daughter and her sister, as well as one for my neice. I already have one for my daughter,Jasmine, but now she wants video. All I ccan say is, "I'll try". Jasmine is still waiting for her doll house. Jasmine is too old for it but I think I will try to finish the doll house and post my progress If the surgury goes well.

Brain Surgery!

I am scheduled to get an implant to help control my tremors. They have gotten pretty bad. They are the main reason I have not updated this blog in months. It has become more effort than I have felt like giving.

I will try to do a better job of updating my blog now that I have decided to get the surgery. There may be people that are interested in how in how I am doing. Hopefully I will even be able to make some of the improvements to my blog. Maybe someone who is considering the surgery can be informed by my experiences.

Let me describe the surgery. I will get two (diodes?) implanted in the front part of my brain. I have to be awake the entire time. they need me to be able to tell them if how I feel. After they are done they are done doing that thy will put me out (thank god) and implant the control device in my chest. I think I am scheduled for the 2 0f October.

I am also scheduled to change my MS medicine on August 30. I have to speak with my neuro ( neurologist..... get hip!). There may be possible complications I want to be aware of.

O.K. I have been layin' some heavy stuff on you so I will end this entry with a Joke.

Why did the chicken cross the road?


To get to the other side. You probably should have seen that coming

Jasmine plays the piano

Time for changes!

I need to make drastic changes. I am talking about changes in my life as well as changes on this, my humble little web log. I want to add video as well as a slidshow of my pictures to my blog. I have been toying with the idea of linking some of the free web bloging pages together. I should be able to do what I want but I don't know why I can't.I need a secratary!My daughter is sitting next to me. I guess she wants to use the computer. I was going to make a long and drawn out speech about how life sucks and how I need a girlfreind. Yet again my readers have gotten lucky. I have to watch what I write. There are youngins around... Changes are coming or my name isn't CRAZILYNSANE (actually its James E Childs Jr.)

Time for an update

I guess it's time for an update. It is probably past time. I have been on line a lot I just haven't felt like making any updates. I met a girl on line last week. She looks good too(It is not everything but I'd be a liar If I said it didn't count). I was chating with her for awhile. I haven't heard from her since though.

I hung out with my boys Saterday. We went out to a strip bar to celebrate my freind shawn getting maried. All I can say is, "Damn!" The funny thing is my freind Sal said it wasn't as good as the time when we went on my birthday. He told Shawn's fiance "I want a do over!" (uh-o)

My freind Mark got really drunk. I haven't seen him for 13 years. He was out of control. We were almost at the club but he said he had to piss. we stoppped under a bridgge and instead of just getting out of the car and going next to the pillar he ttried to climb away from the car falling down the whole time. We took two cars. When a police car pulled up behind sal who was behind us I could have swore we were all going to jail. The drivers were not drinking but everybody else was. The cop was behind Sal who was behind us. My brother Jeremy was telling John the driver "go,go,go!" we just drove away. If cop followed us he followed us. He didn't

If we go again Mark is not going. I have only told part of the story... If we do get a do over he is not going. I thought I was going to jail.

When Doves Cry

Dig if you will a picture...

"Damn I love prince."

I am listening to Prince right now, so if you don't know at least act like you do. It isn't too often that I could say that about another man. I just feel like I know him from his music. I was a wannabe musician for years before I lost the ability to play. I still have dreams. I still have the theory and I read music. If Beethoven could do it after he was deaf I could do it. with the modern equipment I think it might be possible.

It looks like it's going to be a lonely Valentine's Day. I haven't really talked to a woman romantically in a while. (I'm not gonna tell you. Don't ask.)

I'm working on my business plan right now. I have a few ideas I'm going to look into.

1. Construction contractor business
2. A DJ service
3. A music Label

I like all of the ideas for different reasons. I haven't chosen any thing yet. This will be the place to find out what I decide. Maybe I will decide to do all three.

I hate technology..I love technology

I have been listening to Ken radio's world tech round up. http://www.kenradio.com/ The world really is getting smaller. I am impressed with all the changes that are coming. For instance... I want an Iphone! I don't know if I would be able to use it to the full extent of it's capability. I really should concentrate on finding a way to make a little money. It's just that the tech stuff is...well, almost sexy. If I could find a nice nerdy chick I think I'd be set.lol

I have been toying with the idea of starting a construction company. I want to concentrate on the business end of the work and contract out the labor. I want to put in lifts,elevators, and ramps. I want to make existing homes handicapped accessible. I have a few things I need around my own house.

I'm still in the business plan stage. I want to do so much. I would love to make my business into the the new millennium with some of the new tech.

These kids I got hanging around me are going to expect diner soon. I guess I better get to work on it.

Hmmmm...

I am still trying to get the screen saver put on the blog. So far I have only been able to put a link to them in the crazy's links section of my blog. I don't think I even have that much space to put pictures. I only have a free account with flickr http://flickr.com . As usual I have a Little I still need to learn. I need handicapped accessible computer equipment. I get tired to easily as it is now. I lost my 1 gb flash drive with some of my pictures on it some where too. It's somewhere around here, all I need to do is find It. That's harder than it sounds.

Pictures!

I planed on making today the day I added a slide show to my blog. I'm not sure about the best way now. I have a flickr account, but I'm not sure it would be better than using Picasa the Google owned company. I am thinking that the Picassa or Google owned software will work better with my Google hosted blog on Blogger. I'll have to ask someone...

I also want to personalize my blog with video and pictures in the template. I'm not really a computer person but I'll figure something out

getting it together!

I'm trying to get my life together. I have been for a long time. I want to:

1. Get my living space neat and organized.
2. Get the kids neat and organized.
3. Get the Lilly situation under control. :-(
4. Come up with a better plan for dealing with the kids' mother.
5. find a way to make some money.
6. Make my blog better.
7. Get a Date! *<:-p

Cleaning up will not be as easy as it sounds. I have health issues and I tire easily. I don't really walk that well. I plan on doing the job over a week. Just getting motivated to try has been a problem for me for a while now.

The kids rooms should be easier. I just have to bark orders and look mean.

Lilly is still having problems. The toileting accidents may be a biological problem. I am not sure. My mother has been trying to get Lilly to a doctor but Lilly is uninsured.

This was covered by medicare(Medicaid?). My mother makes too much as her joint legal guardian to qualify for that. We can't get insurance with out the kids' birth certificates. Their mom is dragging her feet about supplying them. I think she is worried about loosing them permanently. She may be right.

I need a plan for dealing with Cindy. She likes to think she is the only one with a brain. She takes advantage of my generous and care free nature. ;-) Not this time. I have responded wrongly to her in the past.

I need money! Everybody wants a piece of my little SSI check. I'll figure something out.

My blog will get a flickr screen saver http://www.flickr.com/explore/ I am also adding more links. I may change the diary style format to something more useful. suggestions are welcome. Just click the comments link after this entry and leave a message.

I am too nice.

I let the grandparents of the two kids pick up my kids today. It was about an hour ago. Cindy the kids mother was supposed to pick them up, but when the time came for them to get picked up, their paternal grandfather showed up.

I shouldn't have let them go with him. They were all ready to go and they just left without me saying anything. There is a court order Thar says I need to get a clean drug screen before the children go anywhere, but I just let them go.

It will not happen again. I am tired of it. I have done more than I should. They will not take advantage of me again. Cindy has the habit of doing that. I will not let it bother me. We will handle this in court.

I don't know.

I am not sure if Lilly my step daughter is just lazy or if she is really mentally handicapped. She is seven and she can't read at all. I go over the rules but she does not seem to get it. I am going to print out some flash cards and see if that helps. My ex may have done something to her during her pregnancy. She is developmentally behind in any case.

I have been trying to meet people but no one seems to be interested in talking to me. The whole disabled thing is a MOTHA'. I won't go into it except to say disability can be lonely.

I didn't have much to say. Hopefully I will be more inclined to write next time.

I wil not get angry...I will not get angry...

Are you guys ready. My complaints are many today. I don't want to but I feel like I have to...complain. I think I was born to do it. Life just ain't far! I'll keep it to a minimum.

I had a Friend help clean the down stairs of my mothers house. It is a lot better than it was. He still is not finished. He will be here soon ( that means I have to go soon, ya lucky duck). He is starting up a cleaning/ janitorial company. Shawn, my friend has experience doing that type of work. His father has his own business. He and I both worked there when we were in our teens.

I am thinking about starting my own company too. I want to make homes handicapped accessible. I might try to do business or commercial work too. I know there must be a market out there for it. I'm disabled myself.

I am not sure I could get the money together to start something like that up. I might even want to get into real estate.

I don't know. I need to write a business plan. I use to be a carpenter so I can see it might be possible. I know I will not be the one swinging any hammers though.